Around 9,000 people have signed a petition calling for new NHS safety protocols to be introduced following the death of a five-year-old Aberdeen girl.
Amy Lornie died in September amid claims doctors failed to diagnose her fatal brain tumour.
Her mother Angela Bain, 35, is campaigning for an “Amy’s Rule”, which would introduce a three-stop process to allow patients and families to raise concerns if an individual is not improving as expected.
Ms Bain was told her daughter would have had an 88% chance of surviving brain tumour treatment had the disease been caught earlier.
She believes doctors failed to diagnose her daughter’s brain tumour until it was too late.
A petition calling for ‘Amy’s Rule’ has been set up in the five-year-old’s memory.
Next week Ms Bain will meet Professor Jason Leitch, the Scottish Government’s national clinical lead, senior clinicians and government officials to discuss her proposal.
‘Heart-breaking’
Ms Bain said: “The amount of support on the petition is just overwhelming but the number of poor families that have been through the same and are going through the same is staggering.
“I really think we can do good here and turn a negative into a positive for myself and the other families. It’s just truly heart-breaking.
“Listening is so simple but for whatever reason the lack of communication seems to be a big part of our stories.”
This tragic story involving Amy has struck chords with the public’
— MSP Liam Kerr
Professor Leitch said: “I look forward to meeting Mrs Bain to hear her experience first-hand, to share what the health service in Scotland is already doing around patient safety and to discuss what more can be done.”
North East Tory MSP Liam Kerr said: “After pushing the Scottish Government to finally listen to Angela, I’m glad she is now being given the opportunity to present her proposal for new safety protocols on Monday.
“This will allow her to gain some form of clarity on the situation, which has had a devastating effect on her and her family.
“The tragic story involving Amy has struck chords with the public and this has been shown by more than 8,500 people signing Angela’s petition.”
‘We offer our sincerest condolences’
A NHS Grampian spokesman said: “We are currently reviewing the circumstances around Amy’s tragic death.
“We have had dialogue with her family as part of that process and will be in touch with them, in the near future, to update them.
“As the review is ongoing we cannot comment further and we offer our sincerest condolences to Amy’s family, friends and all affected by her death.”
